05/20/2026
🦓 May is Ehlers-Danlos Syndrome (EDS) Awareness Month!
Did you know that certain underlying conditions can alert doctors to an increased possibility of scoliosis developing in young children? This is known as syndromic scoliosis.
Some of the most common syndromes associated with this type of scoliosis are those that affect connective tissues, including Ehlers-Danlos Syndrome. Because connective tissue supports the spine, EDS can directly impact spinal alignment.
The severity of the curves varies greatly based on each individual, which is why early detection, regular screenings, and specialized care are so vital. At National Scoliosis Center, we are proud to provide custom care and bracing tailored to the unique needs of our EDS warriors.
Does your child have EDS? Regular spinal screenings are a key part of their healthcare routine. Contact us today to learn more about how we can support your family's journey. 💚
The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders. Connective tissue is found throughout the body and provides support, protection, and structure to organs, joints, skin, and blood vessels.
Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.
Other features are only seen in certain types of EDS and may affect different areas of the body, such as the eyes, mouth, and spine. Some types of EDS are associated with fragility of the major blood vessels or organs, which may lead to life-threatening complications.
The current classification [2017] includes 13 types of EDS [shown in the image]. Since the 2017 classification, researchers have identified additional genetic variants that cause symptoms similar to those seen in the Ehlers-Danlos syndromes. These variants may represent new types of EDS or may fall under one of the current types of EDS.
When talking about EDS, it’s important to mention the specific type whenever possible, because each type can have different symptoms, complications, risks, and care needs. Using the correct type helps raise awareness accurately, improves understanding of the lived experience of that condition, and avoids generalizing a single “EDS experience” across all types.
Learn more about the types of EDS at https://www.ehlers-danlos.com/types/